NF Network: Why We Do What We Do

Charity Name
Neurofibromatosis (NF) Network

CFC Zone

Charity Type

CFC Number
10227

Cause Area

Transcript

Transcript - Neurofibromatosis, Inc CFC #10227 (DBA: Neurofibromatosis Network)

NF Network: Why We Do What We Do

The NF Network (formerly NF, Inc.) is a non-profit 501(c)(3) organization and was founded in 1988 by a group of people who were in some way affected by neurofibromatosis. We are the leading national organization advocating for federal funding for NF research and building and supporting NF communities. The NF Network’s goal is to eradicate the health issues, pain, isolation and uncertainty that the diagnosis of NF inflicts. The NF Network provides opportunities for local NF organizations to share experiences. The network is a dynamic and growing open space for shared resources, development of new tools, and creation of innovative programs. It brings together groups from around the country to speak as one voice on national issues.

The mission of the CFC is to support different charities through a program that is employee focused. All federal employees have the opportunity to participate. Pledges made by Federal civilian, postal and military donors during the campaign season (September 1st to December 15th) support eligible non-profit organizations like Neurofibromatosis Network and others that might best fit your interest. Check with your company’s Human Resources Department. Our CFC Code is #10227.

Transcript
00:01
we actually heard the word
00:02
neurofibromatosis for the first time
00:04
back in 2009. my daughter emma was not
00:07
even a year old
00:08
fortunately after seeing pictures we
00:10
probably didn't want to and reading
00:12
things that
00:13
were only possible in a small percentage
00:15
of the people that have nf we connected
00:18
with nf network
00:24
they're people we call them we have
00:26
questions they're people we lean on when
00:28
things are hard and people who
00:30
understand what it's like to have a
00:32
child with nf
00:35
i was immediately brought into this
00:37
community
00:38
that
00:39
is now truly more than that to our
00:40
family it's part of our family
00:46
until there's a cure we need the
00:48
generous support of people like you to
00:50
join with us and help provide support
00:53
and education when the next nf family
00:55
calls

English (auto-generated)

Neurofibromatosis Network – CFC#10227

For more information about the NF Network
Contact us at: www.nfnetwork.org or [email protected]